Exercise:

4/27: 1 hour on the pedaler

4/28: 1 hour on the pedaler

4/29: 1 hour on the pedaler

I’m going to start pulling my thighs away & towards each other. This week the muscles in my thighs seemed particularly responsive. I wouldn’t have even thought to try this on the bed before feeling this burst of activity. I was pleasantly surprised at how easy it was to do.

4/30: 60 minutes on the pedaler

5/1: 60 minutes on the pedaler

5/3 aquatic therapy

5/5: aquatic therapy

5/6: physical therapy

5/7: 60 minutes on the pedaler

5/8: 60 minutes on the pedaler

5/9: 60 minutes on the pedaler

5/10: 60 minutes on the pedaler

5/11: 60 minutes on the pedaler

5/12: aquatic therapy

5/13: physical therapy- did really well. I got on all 4s, on the ball. We talked about my crawling.

Did yoga- was impressed with how strongly I could stay in table top position, also did child’s pose

We received the tonal! Did about 15 minutes with it. I need to put a pillow on my lower back so I can sit forward. I can’t wait for my chair and to be fixed!

5/14: 30 minutes on the pedaler

5/15: 30 minutes pedaler

5/17: 30 minutes pedaler

5/18: 60 minutes pedaler

5/19: 60 minutes pedaler & 30 minutes tonal, parallel bars & James stood me up completely, held on all 4s, then was able to hold being on my knees, shoulders already sore @ 5:25 pm

5/22: 60 minutes on the pedaler

5/24: aquatic therapy

5/25: 45 minutes on the tonal

5/26: aquatic therapy

5/27: 60 minutes pedaler

My therapist likes that I do the pedaler for the reciprocal motion.

5/28: tonal for 20 minutes

5/29: 60 minutes pedaler

5/30: 60 minutes pedaler

5/31: aquatic therapy

6/1: 60 minutes pedaler

6/2: 60 minutes pedaler

This month was interesting because I took a really thoughtful look as to why I use cannabis and I confirmed that I use it most noticeably for pain, then I was surprised at how much anxiety I have. I start to focus on what ideally I would like to be doing- say yoga, which will lead to feeling like I am drowning because I can’t just get up, stand, then get into solid yoga poses. This becomes both depressing and anxiety inducing. Lastly, spasticity, which has greatly reduced since the stem cell therapy but I still will have jerks/twitches of spasms.

Vaping

Greatly helps my muscles relax reducing pain
Reduces my anxiety- in large part is due to my lack of activity
Stops my muscle spasms when I start jerking (this can get rather uncomfortable)ok weI

I wanted to confirm there was a reason for in using it. I’m grateful that I have it. I like vaping because it hits your system right away. I’m spoiled & have learned to make tinctures and medicated oils but I still prefer the fairly immediate effects of inhaling cannabis.

My tolerance is higher due to my cannabis use. This is another reason why I like to vape, effects take 0-15 minutes to be felt. A tincture would take 15-30 minutes and an edible would take 30 min-2 hours to feel the effects. I’ve included a photo of a label for a cartridge I go, it’sOrange Kush aka Orange OG Weed Strain Information | Leafly. It’s high in limonene which has been shown to help reduce anxiety- look to citrus fruit if you’d like to include it in your diet.

I became so pro-cannabis after tried a strain that was just right for my system. It would take away pain & muscle spasms and actually improve my strength! Unfortunately, that strain has changed & no longer has the same magical effects. This is also why I started to grow (& what a learning curve that has been!) + it was costing me $1,000-1,500 per month to acquire enough cannabis to see me through the month.

Growing cannabis when I first started:

Now. I’m lucky enough to have parents fully behind me & who are insanely good gardeners/farmers to boot!

I get frustrated, as I’ve mentioned before, at not being able to walk. I keep going back to that I also know that I get hit with attacks to my nervous system that I heal from. The scariest thing that I’ve experienced is optical neuropathy. It happened about 12 years ago. Over about a month the vision in my right eye started to darken gradually until I could barely see out of it. My neurologist got me on an iv of steroids, it took a year but the darkness finally faded and I’ve not had an issue since. My type of multiple sclerosis is called remitting relapsing because it does just that. I do have faith that I will rebound, I appreciate everyone’s prayers and good thoughts as I take on this challenging journey.

Please check the observations from Debbie in the comments below.

Stem cell therapy progress 5